As an unpaid carer you have a right to request flexible working, time off in emergencies and parental leave. The Employment Rights Act 1996 gives all employees the right to take a ‘reasonable’ amount of time off work in order to deal with an emergency involving a dependant. It is at the discretion of the employer, whether or not the time off is paid or unpaid. If you are an employee with 26 weeks continuous employment at the time you make an application, you have the right to request flexible working. You also have the right not to be discriminated against or dismissed because you have made the request. To find out more about working and caring take a look at our fact sheet here. 

Young Carers  who are under 18 years of age are entitled to a ‘young carers’ needs assessment’ to decide what kind of help they and the family might need. The assessment must decide whether it is appropriate for the young person to care for someone else, and this includes taking into account whether they want to be a carer. Consideration must be given to education, training, leisure opportunities and the young person’s views about their future.

If you under 16 or looking for support for young carers, you can contact East Sussex Young Carers/IMAGO, which supports Young Carers aged 5-18 who are responsible for caring for a family member with a long term illness or disability, prioritising Young Carers caring for a parent with a mental health or drug and alcohol issue.Telephone:0300 777 2011 or email:info@eastsussexyoungcarers.org.

If you are looking after someone who is elderly or disabled, the law will protect you from direct discrimination or harassment because of your caring responsibilities. This is because you are counted as being ‘associated’ with someone who is protected by the law because of their age or disability. 

As a carer, you cannot be discriminated against on the basis of your association with a disabled person. An example is when, as a carer, you are refused entry to a venue because you are with someone who is disabled.  Find out more information about protection from discrimination and your rights here.

For further information about the Care Act, and for useful fact sheets regarding Carers Rights and benefits see the Carers UK website.

Your GP may not necessarily be aware that you are a carer looking after someone. You have the right to ask your GP to recognise you as a carer on your patient record. This means you could benefit from a free flu jab and other health and wellbeing options. Your medical practice may also offer flexibility with appointment times for yourself and/or the person you care for to accommodate your caring situation, and agree to share information about the condition of the person you care for (with their consent).

If you have not been identified by your local GP as a carer, check their website to see if they have a simple form you can fill out, or give them a call to find out more.

As a carer, you’re entitled to a free flu jab each year if you receive a Carer’s Allowance, or are the main carer for an older or disabled person who may be at risk if you fall ill. Tell your GP or pharmacist that you are a carer and ask your GP to be put on their carers register so that you will be contacted about annual flu jabs. Find out further information here: www.nhs.uk/flu

A Covid-19 booster vaccine is being offered this Autumn to people aged 65 and over who are a main carer for someone at high risk from COVID-19. More information is here. It’s more important than ever to get the winter vaccines this Autumn, as both flu and COVID-19 viruses have the potential to cause serious illness and hospitalisation. Find out more on the NHS website here.

An NHS video explaining winter vaccines can be viewed here.

When the person you care for is coming out of hospital, you have a right to be consulted on the hospital discharge process. The hospital must identify you as their carer and your views should be considered wherever possible. More information about coming out of hospital, discharge procedures and assessments is available from Carers UK.

We are here to help all carers in East Sussex. If you would like to understand and know more about your rights as a carer with guidance through the health and social care system, or help to find out any other information that can support you in your caring role, please contact us.

You can have your voice heard and taken into consideration by Adult Social Care when deciding how best to meet the needs of the person you care for. Having the right information at the right time can make a huge difference. Care for the Carers can suggest what to consider for gathering together the right information in advance, for when you might need it, as well as how to access timely information. East Sussex County Council’s information booklet ‘Do you look after someone?’ describes the help available through its commissioned services if you look after an adult in an unpaid caring role.Care for the Carers can also signpost you and make a referral to various organisations that can support you as an unpaid carer.

Please contact us if you would like to talk things through, or would like support.