Carers Voices Conference 2020


Alzheimer’s Society

The CrISP programme is an opportunity for Alzheimer’s Society to share a variety of information with carers about caring for a person with dementia. It is also a friendly and confidential environment for carers to share their own experiences.

To find out more please call 0333 150 3456 or visit the Alzheimers Society website.


Amaze is a charity that gives information, advice and support to families of children and young people with special educational needs and disabilities (SEND) in Brighton & Hove and Sussex. They also support young people with SEND up to 25.

To find out more please call 01273 772289 or visit the  Amaze Sussex website.

East Sussex Parent Carer Forum (ESPCF)

East Sussex Parent Carer Forum is the new forum for parent carers of children and young people with special educational needs and disabilities in East Sussex. They work together to ensure every parent carer feels that their voice and experiences matter and contribute towards developing and improving services to bring about positive change for SEND families.

To find out more please call 0300 770 1367 or visit the East Sussex Parent Carer Forum website.

East Sussex Young Carers

East Sussex Young Carers supports Young Carers aged 5-18 who care for a family member with long-term illness, disability, mental health or substance misuse issues. Following assessment, ESYC offers short-term interventions including signposting, one-to-one support and workshops. During Coronavirus, they have continued to support Young Carers via telephone, email and video chat.

To find out more please call 0300 111 1110 or visit the East Sussex Young Carers website.

British Red Cross

Home from Hospital and Carers Crisis Response

Home from Hospital is for those who live alone and/or have caring responsibilities following discharge from hospital. CCRS provides practical and emotional support to carers in crisis. Within both services Volunteers are able to carry out practical tasks, companionship, carer respite and much more.

To find out more please call 01273 227 800 or email:

Culture Shift

Culture Shift delivers a diverse portfolio of projects, working with a wide range of beneficiaries including children and young people, disabled people and families and carers. They also facilitate engagement and co-design projects and provide training and research and evaluation.

To find out more please call 01273 478558 or visit the Culture Shift website.

Coastal Wellbeing

Coastal Wellbeing is a not-for-profit social enterprise based in Lewes and Newhaven, East Sussex and provides Wellness Recovery Action Plan (WRAP®) and other wellbeing services and professional training.

To find out more please call 07507 734370 or visit the Coastal Wellbeing website.

DISC Dementia Support

DISC Dementia Support provides a support service for the carers of people with Dementia throughout East Sussex. Louise and Emma from DISC Dementia Support have over 10 years of experience in supporting people with Dementia and their carers, both personally and professionally. They both have experience in setting up and running dementia services for a national charity as well as setting up a smaller community voluntary service.

To find out more please call Emma Lyden on 07591 250988 or Louise Smith on 07591 251005 or visit the DISC Dementia Support website.

East Sussex 1Space

1Space is a directory of care, support and wellbeing services mainly for adults to get help. The 1Space Directory has been designed to bring together groups and organisations offering services for people of all ages and a diversity of needs, into one place online.You can find local groups and services to support you, your family and friends.

To find out more please visit the 1Space East Sussex website.


Healthwatch East Sussex is an independent voice for the people of East Sussex. They are here to understand the lived experiences of people who use health and social care services in the county. They ensure that all sections of the community are represented in the decision making process and that views are listened to, recorded and reported.

To find out more please call 0333 101 4007 or visit the Health Watch East Sussex website.

St Peter and St James Hospice

They provide expert and compassionate hospice care to adults living in Haywards Heath, Burgess Hill, Uckfield, Lewes and the surrounding villages. They also support their families and friends through the challenges of bereavement and grief.

To find out more please call 01444 471598 or visit the St Peter and St James Hospice website.

Care for the Carers

Care for the Carers is the Carers Centre for East Sussex. We have been supporting and representing unpaid carers in East Sussex since 1989. Our team of staff and volunteers provide free practical and emotional advice and we run carers support groups. We represent carers and raises awareness of caring, working with local communities, organisations and service providers to build a carer friendly East Sussex.

Care for the Carers Homepage

Association of Carers

The Association of Carers supports unpaid Carers in East Sussex to continue in their caring role by providing free, high quality, and volunteer-led services that encourage independence and reduce isolation.

To find out more please call 01424 773687 or visit the Association of Carers website.

Association of Carers logo

Sussex Partnership NHS Foundation Trust

Sussex Partnership NHS Foundation Trust provide NHS care and treatment for children, young people and adults of all ages living in south east England. Their services include mental health and specialist learning disability services and very specialist care for people with complex health conditions and social care needs. They also provide care in people’s homes, in specialist clinics, hospitals and GP surgeries.

To find out more please visit the Sussex Partnership NHS Foundation Trust website

NHS Sussex partnership